friends and family

To Our Family & Friends

How to help your family and friends understand this unfamiliar territory.

Mast Cell Activation Syndrome – is a condition that causes mast cells to release an inappropriate amount of chemicals into your body.

Like an allergy but different. These chemicals wreak havoc in our bodies all the while changing the triggers (what sets off these chemicals), the chemicals change (what gives us the symptoms), so the symptoms change (from mild to anaphylactic) as well.  It’s frustrating, to say the least.

Please bear with us as we try to navigate this new way of life. No food, no walks, no extreme temperatures, seriously this sucks and the last thing anyone of us wants to do is make it harder for our loved ones.

How can you help?

  • Be patient (please).
  • Understand trying new foods is like Russian roulette.
  • Life is going to change (maybe by the day).
  • This sucks (for you too).
  • I’m seriously trying my best even if it looks like I am just watching TV.
  • Navigating this together helps a lot.

Please send comments or additions so that we can make this the best article to give to our loved ones to help them understand.

To Us! Love and Health!

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